Exhausted

I have pics to upload. I just need the energy to do it. It is 3:30am here. Deze is awake. She was sleeping, but she woke back up about an hour ago. She is bouncing off the walls. There is no way she is going to sleep anytime soon.
We have all been sick here. Some sort of respiratory thing. I have no idea what it is, but its not fun. Deze is having asthma issues as well. We are still fighting the school system to get her help. They have finally agreed to retest her. We did the written test already, anything above 74 is considered to be autistic. She scored 129, that should tell them something.
I will update tonight (Saturday) since Germ is off work I should have the time. Off to get Deze out of the bunny's food again!

Its been a long week

We got back from the waterpark last night. It was a blast!!! I have a few pics to share in a while....have to get all the kids to bed first.

In the appointment at the speech place we learned alot of helpful things. We learned how to speak to Gabe and Deze to get things across better. They were stunned that both of them are not in speech. And even more shocked that the school is not helping Deze. It was also stated that they think that Deze may be "worse off" then we thought. The doctors suspect hear loss. She goes in Oct 23rd for hearing tests with a specialist that knows how to deal with ASD kids.
I am not sure how many more diagnosis I can deal with on her. She is going to be 4 in less then a month and has a list of things "wrong" with her longer then most adults do. I feel bad for her......
She will be starting school as of next week, headstart. They are not giving her any services. We have contacted PACER to help us with this. I am not going to let the school refuse to help her out.
Friday there is a conference in town to help other parents with autistic kids...its the doctors we saw yesterday that are doing it. My kids are the main subjects of the talk. They were taping them yesterday at the appointment. We are also getting a "sack swing" for the kids. It hangs from the ceiling and it like a cocoon for them to sit in. It was very calming for them to play in the one yesterday.

We have our finalization meeting for the PCA on Thursday...if I remember right. I will put it this way....Gabe has 5 apts in the next month, Deze has 4, and we have 1 with the pca thing and 2 with school...I have been mixing them up lately. It is hard to keep it all straight!

Tajia is loving school and doing better. Things are getting worked out. Gabe is homeschooling still and doing good. He does not sit there and listen, actually he sits and plays on the floor with legos while I read the story or whatever to him. Then he hops up, does what he HAS to do and is back to playing....shocked me as I didn't think he heard a thing I said!

We have 2 more kittens and a bunny. You will see pics of them at bedtime too.....

Gaydin and Tajia go to school in the morning, Deze to the doctor to fill out papers on allergies and asthma for school. It never ends....there is no such thing as sleep in this home.....its just coffee and breathing to remain calm!

And it continues!

So I think today will be better. But NOPE. First off the lights were shut off cause we were a DAY late on paying them....got that taken care of.
And then I get Tajia from school. And in comes the wonderful email, from the teacher. She wants us to have a healthy snack for 30 kids tomorrow morning. Germ has the car. I don't have the money for healthy. So at 6am I get to go to the store to get a snack. And then I am going to be requesting a change of teachers.
It was not the snack request...its HOW she did it.

Today was Tajia's first full day of Kindergarden

And it did NOT go so well.....well the major part of the day was ok. Drop off was GREAT! There was a little boy that she was crushing on last yr that is in her room this yr too. He got there on the bus and waited for her in the hall....he held her hand and helped her find a seat. It was so stinking cute!
Snack time however was not ok. Milk is free to all kids in MN. Its a state law in kindergarden. Well they have to raise their hand for a count of how many milks to get....well 2 boys didn't raise their hands. And when the milk got there one of them changed his mind. He got a milk. Tajia got shorted! And to add to that she was not allowed to get her water bottle from her lunch box.
She was VERY upset that she got animal crackers with nothing to drink. She followed the darn rules and got shafted!
I emailed the teacher...she replies telling me she is sorry, but that miscounts due to mind changing will happen.....OMG NOT ok! I am going to be talking to the Principal in the morning. There is a mini fridge in the room....there are 27 kids in the room. Get 27 milks and if a kid does not want one then put it in fridge...How hard is this?
And if you are going to screw over a 5yr old......don't do it to the ones that followed the rules and raised their hands!!!!!!!!!!!!!!!!!!!!

I think Deze was just seeing if they were doing their job still

This morning we wake up to Deze with a kid vitamin bottle in her hand. Child proof bottle. It was on the top of the cabinets in the kitchen. I ask her how many she had of them...and she says "deze likey them lots"
So on the phone to poison control we go. And as a heads up if you are buying kids vitamins, get the super cheap store brand kind. Why? Cause they are generally iron free......good thing for no iron too or we would be in the ER room right now......

I have a secret

In the middle of this month we have to go to Duluth for a big doctors apt for Gabe and Deze. Its at 8am on a Monday....The place had a 7 month waiting list. So this is a big thing. We were going to stay the night , but we told the kids that the only hotels that we can do are ones with no pools. The kids are not happy about this, but still happy there is not a 5am wake up call to make the drive...ok it would really be 4am....
So here is where the secret comes in....I made a reservation. It costs the same as any hotel. It has 2 queen beds and 2 SETS of bunk beds in the room....as well as a fridge and microwave and internet....all the goodies.
BUT the BIG BIG thing is.....

http://www.duluthwaterpark.com/

ITS A INDOOR WATERPARK!!!!!!!!!!!!!!!!!!!!

We are not telling the kids this! They have been one time 3 yrs ago and loved it so much. We are dragging the PCA with us for extra help there. I can hardly keep my mouth closed!!

Update on the appointment

Just a fast update tonight as its 2am...
Nomuken's eyes will remain intact, untouched by laser or knife.
Her right eye showed a 2% improvement from the apt 1yr ago in Oct. She has a new script. And goes back in 3 months......
I am more then relieved on this one....

Nervous about what tomorrow will bring

Tomorrow morning at 10:45 am Nomuken will have her eye apt. This is the big one....the one where we learn if she needs eye surgery. She has had glasses for a yr in oct. They would prefer to do the surgery before it gets too cold here. I am nervous about this, the idea of eye surgery scares me.
I will update after the apt...but if anyone reads this before the update, please say a prayer, keep us in your thoughts....or whatever it is you do...that she does NOT need this surgery.
If she does it would be the first of 3 or 4 depending on how bad it is.....
She has no idea..She will not be told till we know for sure. No reason to worry her too...