We got back from the waterpark last night. It was a blast!!! I have a few pics to share in a while....have to get all the kids to bed first.
In the appointment at the speech place we learned alot of helpful things. We learned how to speak to Gabe and Deze to get things across better. They were stunned that both of them are not in speech. And even more shocked that the school is not helping Deze. It was also stated that they think that Deze may be "worse off" then we thought. The doctors suspect hear loss. She goes in Oct 23rd for hearing tests with a specialist that knows how to deal with ASD kids.
I am not sure how many more diagnosis I can deal with on her. She is going to be 4 in less then a month and has a list of things "wrong" with her longer then most adults do. I feel bad for her......
She will be starting school as of next week, headstart. They are not giving her any services. We have contacted PACER to help us with this. I am not going to let the school refuse to help her out.
Friday there is a conference in town to help other parents with autistic kids...its the doctors we saw yesterday that are doing it. My kids are the main subjects of the talk. They were taping them yesterday at the appointment. We are also getting a "sack swing" for the kids. It hangs from the ceiling and it like a cocoon for them to sit in. It was very calming for them to play in the one yesterday.
We have our finalization meeting for the PCA on Thursday...if I remember right. I will put it this way....Gabe has 5 apts in the next month, Deze has 4, and we have 1 with the pca thing and 2 with school...I have been mixing them up lately. It is hard to keep it all straight!
Tajia is loving school and doing better. Things are getting worked out. Gabe is homeschooling still and doing good. He does not sit there and listen, actually he sits and plays on the floor with legos while I read the story or whatever to him. Then he hops up, does what he HAS to do and is back to playing....shocked me as I didn't think he heard a thing I said!
We have 2 more kittens and a bunny. You will see pics of them at bedtime too.....
Gaydin and Tajia go to school in the morning, Deze to the doctor to fill out papers on allergies and asthma for school. It never ends....there is no such thing as sleep in this home.....its just coffee and breathing to remain calm!
Tuesday, September 15, 2009
Its been a long week
Posted by Barbi at 5:52 PM
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