I feel like the hours in the day are melting away. Like there are no longer 24 hours. I don't even know what day it is anymore sometimes, between kids, appointments, watching other peoples kids and therapies.
We have been trying to get to parks and walk every day that it has been nice so far. It is helping Deze some, but she is still my wild child. My child that takes out a jello cup and says "ray ray hungry" then instead of eating it she mashes it in her hands and paints herself in it. She will not let it touch her mouth. One of the few things that she will not eat!
She chowed down some sunscreen just this morning. And Wednesday night bathtime was hell. For me! She says to me "ray ray paint" and I turn from the dishes which is a straight shot into the bathtub where she is (I could see her and hear her the whole time) and there she sits, with a ball of her POOP playing in it. Painting and mashing it. Thank god she was in the shower so clean up was not the end of the world!
Tonight she painted herself in honey....which by the way, is hard to get out of hair. In case you were all wondering!
Gabe is loving being able to go to parks again. He loves the outside, so long as he does not have to get dirty. I have to bring extra clothes with everywhere for him cause one spot of mud and he has to have it off NOW! He has been sleeping better with the activity.
We all walked 4 miles the other day and Deze was STILL up half the night. 2 hours of parks last night and she was up till 2am again. I am thinking she does not wear out!
My one frustration right now is when people attempt to compare kids with autism. There is no comparison, not even to another kid with autism. They are all severe, just in different ways. People assume that since both of mine with autism talk that they are very high functioning. I had someone tell me that the reason Deze's teachers say she is normal is cause they are used to kids with severe autism.....nice theory. But that is about as far as that goes. They are comparing her to 3yr olds at 4.5 yrs of age....and they LIE about what she does and doesn't do while there. (I have stayed with her more then once!)
I actually almost had a breakdown after my kids were compared to other kids, and I was told mine were "very mild cases".....I started to think I am just a bad mom and my kids are normal.
Friday, April 2, 2010
Time just keeps on going....
Posted by Barbi at 8:57 PM
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